tag:blogger.com,1999:blog-2411253170651203836.post6954269703417865817..comments2023-09-12T09:33:43.919+01:00Comments on Behind The Child: InCONtinenceTiahttp://www.blogger.com/profile/11360092874754466982noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-2411253170651203836.post-70309936014684085622011-04-05T07:13:57.924+01:002011-04-05T07:13:57.924+01:00That is totally unacceptable. We get nappies and ...That is totally unacceptable. We get nappies and booster pads delivered for all three girls monthly, Two of the girls get moist wipes. They call me! they are allowed as many as the doctor orders. we do run short on booster pads.<br />I used to buy all their diapers because the ones supplied did not hold anything! <br />Maybe a note from your doctor!Unknownhttps://www.blogger.com/profile/16594475142271908390noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-5402550655397475342011-03-31T22:03:26.701+01:002011-03-31T22:03:26.701+01:00Tia I honestly feel for you. There's a case go...Tia I honestly feel for you. There's a case going through on a similar sort of issue atm (the McDonald case going to the supreme court on the 4th april) keep an eye on it if you can... in the meantime please for the sake of your sanity and the kids health call the Disability Law Service and see if they can help you out with this 0207 791 9800 it's a london number but they cover the whole of England and Wales (and can signpost in Scotland and NI if anyone else needs help.<br /><br />Good luck and I sincerely wish you all the bestCharleynoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-86741459571259174392011-03-30T20:55:05.849+01:002011-03-30T20:55:05.849+01:00Lol love the extra verse - I only got the polite v...Lol love the extra verse - I only got the polite version!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-33375315400058661892011-03-30T12:06:08.037+01:002011-03-30T12:06:08.037+01:00Extra verse to Val's excellent poem above.
Yo...Extra verse to Val's excellent poem above.<br /><br />You can crap when you want if they Just Call You Dave<br />Too posh to remember which Nappies they gave<br />When you visit the Queen you can borrow the throne<br />She won't need a hoist, you can poo on your own<br /><br />But if you're disabled - that's you, or your kids<br />It's just four times a day cos Dave's saving the quidsOrder and Chaoshttps://www.blogger.com/profile/03323101541530828744noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-10364037987947456102011-03-30T04:51:11.709+01:002011-03-30T04:51:11.709+01:00That's horrible that your kids are limited to ...That's horrible that your kids are limited to 4 incontinence pads each per day, that is totally WRONG! They need more! This pisses me off even though I don't live in the UK. I live in the USA. I hope David Cameron sorts this out for y'all asap!Pink (AKA Lucia)https://www.blogger.com/profile/00878112282911908021noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-69855995529937563282011-03-29T22:47:44.811+01:002011-03-29T22:47:44.811+01:00found it!!
The regal Bison when wandering the plai...found it!!<br />The regal Bison when wandering the plain<br />Is free with his movements (he pees with disdain).<br />And when Nature calls him he rations it not<br />But dumps pounds of manure right out of his bot!<br /><br />But if you’re disabled the policies say<br />You only need go some four times a day.<br /><br />When flying the high clouds, the Eagle does dare<br />To shout “bombs away” without further care<br />And no inclination ever crosses his mind<br />To number the motions of his proud behind.<br /><br />Ah but if you’re disabled you have to know<br />Four times a day is all you can go!<br /><br />The Bear is often inclined to slink<br />Off into the woods (to sit and think)<br />And oft, whilst sitting, will gleefully pass<br />Its motions, unburdened with statistical tasks.<br /><br />But if you’re disabled keep out of the woods<br />Four times a day is all of your goods!<br /><br />The Orang-Utang whilst munching fruit<br />Is often heard to break a “toot”<br />And if it should happen to follow through<br />Why then who’s counting, me or you?<br /><br />But if you’re disabled the state wants to know<br />Four times a day is all you can go!<br /><br /><br />The man about town, when out on the lash<br />Does not number the times he nips out for a slash.<br />Nor would he take kindly, no not one iota<br />To be told he had taken far more than his quota.<br /><br />But if you’re disabled you better learn soon<br />A four gallon bladder would be a real boon.<br /><br />Animal and Man, from nation to nation<br />The whole of the planet – the whole of creation<br />We try to determine – Just who is it?<br />That tells us the number of times we can shit.<br /><br />And if you’re disabled and needing to go<br />Who can gainsay you, who tell you NO<br />Your rights are the same, let’s fight this together<br />And go when we want to, the more times the better.<br /><br /><br />Andy Barraclough 2006.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-12376617457990193872011-03-29T22:45:09.963+01:002011-03-29T22:45:09.963+01:00you've forgotten the new supplies also have th...you've forgotten the new supplies also have things like 'stand tall' written on them - that will really boost the self esteem for our kids!<br /><br />Someone wrote a poem about 4 a day - I posted it on another site - will try and find it again!<br /><br />ValAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-46852239136227967942011-03-29T18:06:02.232+01:002011-03-29T18:06:02.232+01:00We've only ever been entitled to either 4 pads...We've only ever been entitled to either 4 pads OR 4 nappies. We use many more continence products than this each day. With a leaky vesicostomy and chronic overflowing constipation... T wears a pull up, nappy and a pad all at the same time. Costs so much money to us every week....but then I guess an incontinent child isn't classed as important in the grand scheme of things. To us as a family and his one to one at school, it is a daily nightmare and a major priority I hope David Cameron gets this one sorted. Clare xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-9929577160930941172011-03-28T15:43:22.517+01:002011-03-28T15:43:22.517+01:00I'm angry beyond words. How dare they? Fancy a...I'm angry beyond words. How dare they? Fancy a s(h)it-in at the PCT headquarters or something?<br /><br />I don't get any pads at all - apparently a leaky catheter means I'm just not quite incontinent enough. I have to buy all of them. <br /><br />I hate this government.Rhttps://www.blogger.com/profile/15436653419185638854noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-52998090564847409692011-03-28T09:05:33.279+01:002011-03-28T09:05:33.279+01:00Tia, I can feel the frustration in your words and ...Tia, I can feel the frustration in your words and my blood is boiling. The NHS will hand out free drugs to junkies and others with self inflicted problems but try to limit the unpredictable need for something that keeps someone clean, dry and hygienic. Oooh it makes me so angry, these management people who make the decisions obviously have no clue as to what they are deciding. I agree with the comment above about contacting the local paper, this is an issue definatly worth shouting about.Clairenoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-13393456565387254782011-03-28T08:53:45.562+01:002011-03-28T08:53:45.562+01:00we've always had 4 pads a day. Its why I start...we've always had 4 pads a day. Its why I started my nappy and campaign and wrote to the PM and had him round for tea. Keep writing, keep campaigning. Cos Dave said he would change this.<br />RivenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-66715443113830712172011-03-27T17:38:29.672+01:002011-03-27T17:38:29.672+01:00http://www.ncb.org.uk/edcm/news/press_releases/pre...http://www.ncb.org.uk/edcm/news/press_releases/press_releases_2010/18_aug_10_pm_stops_nappy_limit.aspx<br /><br />Is this any help to quote at someone?<br /><br />KathrynAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-16310444690795889752011-03-27T10:10:44.924+01:002011-03-27T10:10:44.924+01:00Oh Tia, I'm mad with you. Much luck in trying ...Oh Tia, I'm mad with you. Much luck in trying to appeal/complain. I have a similar but different issue here; the pads that the continence service provides are from one company only, who they have a contract with. They are dangerous for me (my GP agrees) as they cause massive welts on my legs. Despite this, they are still not allowed to provide me with any from the other provider, so I have to pay for them all. Except, when the LA means test me for my care, they won't consider those pads to be 'disability related expenditure' as they ought to be provided by the NHS. Oh joy. I did hear something about David Cameron complaining, as the above poster said, so that might be a good tack to take. Awful stuff. I'm glad to hear that your girls will still have the pads they need, even if they have to be paid for privately, but of course that means not having something else :(Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-10242055522396465132011-03-27T06:28:02.497+01:002011-03-27T06:28:02.497+01:00Tia, David "call me Dave" Cameron emaile...Tia, David "call me Dave" Cameron emailed all PCTs etc regarding this months ago. They have been told that there is no justification for only issuing 4 pads a day if the need for more is greater. Will try and find some info about this for you because it's completely unacceptable that you have been told this.Order and Chaoshttps://www.blogger.com/profile/03323101541530828744noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-6770417919370637552011-03-27T04:44:09.668+01:002011-03-27T04:44:09.668+01:00Oh, Tia--how frustrating!!!! And what a pain!!!! ...Oh, Tia--how frustrating!!!! And what a pain!!!! I know how hard it is to either remember or to just take the time to order what you need--. With all you have to keep up with--one more thing to order can be a big inconvience--plus the frustration of not getting what you need. <br />Since you need more pads than they are willing to give you per day--can you not get a Dr.'s order for what you do need and then they would have to give you that amount?<br />I guess not--otherwise you probably would have mentioned that-but I do know that even though that is another phone call-to the Dr. to get what is needed-our state insurance will honor it and supply what is needed rather than just what they say they will pay for.<br />DebraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-37368377009384080802011-03-27T02:07:29.726+01:002011-03-27T02:07:29.726+01:00Tia big big hugs. I can so relate because of Alex...Tia big big hugs. I can so relate because of Alex. Love your heart! Thank you for being such an example to me.junglemamahttps://www.blogger.com/profile/09176730853175967320noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-19889979078106332972011-03-26T23:19:47.855+00:002011-03-26T23:19:47.855+00:00Meanwhile some fat banker is still taking home the...Meanwhile some fat banker is still taking home their million pound bonus. I heard an interesting phrase this week... about how we "privatise gain, and socialise loss"... i.e. when there is lots of money being made, the people making the money share it amongst themselves, but when there is a big crash, the loss is shared among the already marginalised people of society. Might your local paper be interested to hear from you?Hazelhttp://www.frostmartinhazel.orgnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-32288488864576811912011-03-26T22:56:08.094+00:002011-03-26T22:56:08.094+00:00If the NHS got rid of some of the management layer...If the NHS got rid of some of the management layers, there would be money to supply all your needs. I just Googled this and apparently it was also a problem in 1998!pippinsmumhttps://www.blogger.com/profile/05480746966452608561noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-66355087346312899962011-03-26T22:09:41.497+00:002011-03-26T22:09:41.497+00:00Hi Tia
We are having terrible problems with our 23...Hi Tia<br />We are having terrible problems with our 23 year old son with bowel overflow ie dreadful and chronic constipation.Needless to say we have run out of pads - this weekend is grim.Thanks Tia you have encouraged me,i do not feel quite so sad and alone.<br />MillgirlAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-49510496730815924622011-03-26T21:57:32.422+00:002011-03-26T21:57:32.422+00:00Same system here - 4 pads a day, 12 weeks' sup...Same system here - 4 pads a day, 12 weeks' supply and phone when next order is due. And we've still not got the right order after switching suppliers in August. Supposed to have been sent some different ones on Monday with a three day delivery, but they've not yet arrived. Foolishly, I believed them that they would be here by now, and we've run out :o( Not great!<br />I hope you get the complaint details very soon, and that your complaint has an effect!<br />C xCatherinenoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-68770640124339387492011-03-26T21:23:58.408+00:002011-03-26T21:23:58.408+00:00It's the same in Devon, if that's any cons...It's the same in Devon, if that's any consolation. No, didn't think so :(<br /><br />I sometimes feel guilty when we change children 3 times a day in school, knowing that the last change takes them into their last allocated pad for the day, at only 3pm.Sarahhttps://www.blogger.com/profile/02613789458517584661noreply@blogger.com