tag:blogger.com,1999:blog-2411253170651203836.post8966201146773037351..comments2023-09-12T09:33:43.919+01:00Comments on Behind The Child: Mog's MoanTiahttp://www.blogger.com/profile/11360092874754466982noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2411253170651203836.post-37807441930103297082010-11-06T10:56:43.106+00:002010-11-06T10:56:43.106+00:00I don't mind her choosing to dress up in somet...I don't mind her choosing to dress up in something with Skull and Crossbones on if that's what she wants to do. I don't like it (personal prejudice; I dislike seeing children dressed in bits of dead bodies), but clothing which she can take on and off, grow out of, change her mind about probably just about squeaks in as "ok kid, do your own thing." But as wheelchair covers - no - definitely not. Her last wheelchair lasted a total of six years before it was completely rejected. All that time we'd either replaced backrest or cushion, never both at the same time. And whilst she might be interested in those as an idea now, I'm not convinced she'll still want them age 14. I'd reject fluffy bunnies and rainbows, princesses or anything really on the same grounds - and it's also why I suggested to her that red and orange might not be the best colours to choose, considering how often she wears pink and purple clothing.Tiahttps://www.blogger.com/profile/11360092874754466982noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-46268195491043136312010-11-06T09:07:34.750+00:002010-11-06T09:07:34.750+00:00Why shouldn't she have skull and crossbones? W...Why shouldn't she have skull and crossbones? What's wrong with them? I don't see what's wrong with them even for her age. Just asking.Pink (AKA Lucia)https://www.blogger.com/profile/00878112282911908021noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-24117311944754742822010-10-25T15:38:29.514+01:002010-10-25T15:38:29.514+01:00ditto Ashley!ditto Ashley!kitchuhttps://www.blogger.com/profile/03907460384010952009noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-53507574235626066032010-10-24T19:18:28.514+01:002010-10-24T19:18:28.514+01:00Oh that's fine - clothes are temporary! The wh...Oh that's fine - clothes are temporary! The wheelchair - well the last time we changed the whole thing all at once was when she was 2, and 6 years is a long time to live with something she possibly only wants for the next few weeks. Bedroom - I could be very mean and say when she can sort it out herself she can have it the way she wants it, but I wouldn't put it past her to get that across to someone willing fairly swiftly! Although black bedroom would be cool - keep meaning to get her sorted with UV lights and stuff. It's got a Shrek-esque sleeping beauty type mural at the moment with giant swans and weird parachuting teddy bears. And a giant rainbow. She seems to like it. <br /><br />I think I've told her she could have head as well as foot - she did used to have two switches, so she ought to be familiar with the concept. Her head control is a very variable thing though and the ATNR makes it very tiring. Those feet do seem to manage to pump away pretty independently of each other though.Tiahttps://www.blogger.com/profile/11360092874754466982noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-12297956763975321902010-10-24T12:02:09.324+01:002010-10-24T12:02:09.324+01:00Oh, Mog. You're brilliant. And someone really ...Oh, Mog. You're brilliant. And someone really ought to offer "I want a pirate chair but my rotten mummy won't let me" as the switch message <i>du jour</i>.<br /><br />Oh, and just to double check the obvious, has someone told her that she can have a head switch AND a foot switch if she wants?<br /><br />PS I still say Jolly Rogers, possibly a toy parrot on the top of the backrest... :D just think, Tia, in a few years she'll be demanding to paint her bedroom black and rejecting any clothing in shades lighter than charcoal. Pirates is NOTHING by comparison!Rhttps://www.blogger.com/profile/15436653419185638854noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-40790016068267612242010-10-23T18:28:33.948+01:002010-10-23T18:28:33.948+01:00Maybe some skull socks to cover her neck rest will...Maybe some skull socks to cover her neck rest will do the trick ;-) at least you can take them off when she has to look respectable.Clairehttps://www.blogger.com/profile/18101092105052176177noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-2494699429885516672010-10-23T09:46:56.073+01:002010-10-23T09:46:56.073+01:00I'm so impressed! Hey, Tia, think about coming...I'm so impressed! Hey, Tia, think about coming and helping us maximize our kids' opportunities to communicate. We have so many and I'm so new to all this.<br />And it would be "no" to the skull with this momma, too. :)sarah besshttps://www.blogger.com/profile/08657824655713557099noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-29380639191304247102010-10-23T04:16:18.367+01:002010-10-23T04:16:18.367+01:00I dunno about the meanest mummy ever, but that is ...I dunno about the meanest mummy ever, but that is some *great* communication!Ashleyhttps://www.blogger.com/profile/06458006179630112049noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-80526814231216485662010-10-23T04:11:43.647+01:002010-10-23T04:11:43.647+01:00lol--sometimes we just have to be--they'll tha...lol--sometimes we just have to be--they'll thank us for it later!!<br />:>)<br />DebraAnonymousnoreply@blogger.com