Behind The Child

Faith's a funny thing. Faith let me treat Mog's big seizure last week, then leave her at school to go swimming. And then enabled me ...

We have two empty oxygen cylinders. It happens from time to time; I can predict when, because I can't predict when Mog will need to use ...

A new mum has introduced herself to a mailing list I follow. She has a newish baby, who probably has cerebral palsy, following a pretty roug...

I don't as a general rule bring politics to this blog. I'm not a party member; I do vote, and I haven't entirely lost confidence...

As tLP went back to school and prepared herself for the Big Event yesterday, Miss Mog had her own excitement. A r...

 So back in May, Mog had a wheelchair appointment at school. We discussed the fact that we aren't going to go for spinal...

First, Grolly. Those of a sensitive nature, or perhaps unused to the less pretty parts of complex medical needs may perhaps wish to fo...

We took tLP's powerchair to Florida. And I'm forever thankful that we did. Freedom and independence, and the ability to help rathe...

I'm not sure how I'd feel about losing my voice. I know how frustrated I get when people hear without listening, when I am tal...

 Families of children and young adults with disabilities were asked what they might have told themselves on the day their child was diagnos...

 No this isn't about losing weight! Things here be changing. A new oxygen supplier, means that concentrator A (left) has been replace...

Or, when is an ACE not an ACE? An ACE - Antegrade Continence Enema, is a clever little thing. You take the appendix, bring it to the surface...

This is one for those of us living in the UK. You might not have a disabled child yourself, but I urge you to respond anyway, please. Accord...

I wrote this a few years ago, a friend asked me to find it and so I'm posting it here so I don't lose it again. I got up this mornin...

It all seemed like a good plan at the time. The bus needed a new back door, thanks to losing an altercation with a gate post. The diary was ...

When the spinal surgeon said that the Little Princess would probably stay very short, he dismissed our concerns over this by mentioning the ...