tag:blogger.com,1999:blog-2411253170651203836.post1081533307590225075..comments2023-09-12T09:33:43.919+01:00Comments on Behind The Child: Finding a place in the world for a Little PrincessTiahttp://www.blogger.com/profile/11360092874754466982noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2411253170651203836.post-77253839672945350372011-10-09T20:52:44.910+01:002011-10-09T20:52:44.910+01:00Oh hell, Tia. I get it. And it hurts. I know peopl...Oh hell, Tia. I get it. And it hurts. I know people with CP "just like me" who can do just that little bit more. <br /><br />Keep doing it, Mummy. You're doing a good job. I'm sorry it hurts you bothAshleyhttps://www.blogger.com/profile/06458006179630112049noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-62352297473298832672011-10-06T22:20:37.643+01:002011-10-06T22:20:37.643+01:00Sometimes things just ain't beeping fair! :(
...Sometimes things just ain't beeping fair! :( <br />I just wish that for one day we could pick one aspect of our kids' lives to change, a sort of dream come true for a day. Maybe that would be harder though, having lived that dream for a day, no more, but all the same at least tLP could say and know she did walk even if it was only for one day....(& yes you guesed it, my baby would see...and oh, the things I want to show her!)<br />K xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-49539250900689503042011-10-05T22:04:27.573+01:002011-10-05T22:04:27.573+01:00Hard for tLP, but better that she is not given pro...Hard for tLP, but better that she is not given promises of things that will not happen.Christian friends of ours had a boy with spina bifida, more than 30 years ago.Scans then were rare, it was spotted at birth and the baby whisked away to Alder Hey for an operation. They were told it was a fairly mild case and the Doctors said that were convinced that he would eventually walk. He had a shunt for hydrocephalus, and has endured many operations. To this day he is in a wheelchair.<br />tLP can have a fulfilling life without being able to walk, and she is in a loving Christian family, which is better than many so called normal kids have.pippinsmumhttps://www.blogger.com/profile/05480746966452608561noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-1927311457218396552011-10-05T14:13:20.242+01:002011-10-05T14:13:20.242+01:00This. This is why having a community is so importa...This. This is why having a community is so important, why visibility of diasabled adults and children is so crucial. That she was able to put the telly on and see TWO children that she identified in that one afternoon is why unlike almost every disabled adult from previous generations, tLP will not grow up hating herself and her impairments. <br /><br />I don't have Spina Bifida but I do have a catheter and a PEG and powerchairs and hoists and splints and legs that don't work, not even for standing up for a minute, not even with my splints on. One of these days I hope I can manage to meet tLP and expand her repertoire of People Like Her just that little bit more.Rhttps://www.blogger.com/profile/15436653419185638854noreply@blogger.comtag:blogger.com,1999:blog-2411253170651203836.post-54190528167509869072011-10-05T03:51:45.760+01:002011-10-05T03:51:45.760+01:00(((Tia)))
yes it matters and it hurts--probably Mo...(((Tia)))<br />yes it matters and it hurts--probably Mom the most. <br />Yes we have the grace and Love of God to help us through--but sometimes the pain breaks through as we love and care for our kids needs everyday.<br />Sometimes I have wondered what some of my children would be like if they wouldn't have special needs--but I also realize that if they did not have the special needs--physical, medical, and mental that they have they would not be in our family. It can be a double edged sword. <br />DebraAnonymousnoreply@blogger.com