Today we went to the wheelchair clinic, and they have ordered her a Hensinger Collar. Which looks to me to be pretty similar, but without the ability to unroll at crucial moments. Amazing what a difference having her neck supported makes - even when she's not obviously struggling to breathe I suppose it must have been more of an effort. I do hope this makes things properly better for her - would be great if something so simple solves so much.
And, because she somehow wriggles in everywhere even if posts are most determinedly not about her, a photo of Little Fish from yesterday once I'd worked out how to
It's a serious business, cleaning up after Mumma.
She sat cleaning the spoons and forks, I cleared up the worst of the rest of the house. This morning our cleaner came, and I went out and hid in a carpark with a cup of coffee and an iPhone. I then collected the girls from school and went to the wheelchair appointment, taking the last parking space in the whole carpark. We came home later to a house that was gleaming and sparkly with all surfaces clean, all floors clear, all toys
And then our friends called in, and their children and LF emptied the ball pool.
Sigh.
They did all have fun though. And sane adult conversation was good too.
Tia
That's wonderful about Mog--hope it continues!]
ReplyDeleteLF sure looks like she takes her work seriously-- yet having fun at the same time! What a wonderful attitude :>)
Maybe you should bottle some of that up if you can :>)
Debra
Oh I'd love to bottle it - I'd use it myself and I'm sure I could sell it for a small fortune! Gumption anyone?
ReplyDeleteTia
Fantastic!
ReplyDeletewow, that head support is fab. Wonder if our wheelchair services will allow is one for Celyn? oh look, a flying pig....
ReplyDeleteI'm not sure how much they are, but they can't cost huge amounts (I assume) since wheelchair services had several of them in stock - just not the small sizes. OT mentioned a prescription form for them - wonder if it's something a GP or physio could prescribe if the WS is unhelpful?
ReplyDeleteSeem to be around $120 on some of the US sites so they can't cost vastly huge amounts (cheaper than a Whitmeyer for sure).
And if they really won't, the DIY scarf version is doing a pretty good job too - it is amazing what a difference it's making; she's almost back to her old self. Next mission: get her supporting her airway overnight too.
Tia