I'm still pondering this one.
Mog had a majorly bad spasm this morning; really very far beyond painful, everything locked and twisted. I gave her a shot of diazepam and as it took effect she looked hugely relieved and promptly passed out on us.
So, Mog on the floor, clearly not going to school today, we send her bus off without her and with apologies. It's time for Little Fish to go to school too, and Mog is still passed out on the floor, breathing fairly heavily as everything unlocks and relaxes.
Our carer offers to stay with Mog as I walk Little Fish to school. It's a kind offer, but she isn't trained with suction, so I turn it down. She then offers to take Little Fish herself - it's a ten minute walk, LF knows the way (out of our house, turn left, keep going straight and you can't miss it, follow the other 400 children in red uniforms). Little Fish is very excited about this idea, it seems to be a great solution, and we are just getting ready when I decide we ought to call the office, just to make sure the carer won't get into any trouble for helping us out.
Hmmmm, says the office. And then after a few minutes' thought when they want to know why the carer can't just stay with Mog whilst I run Little Fish to school, they decide this can't be permitted as it is too much of a risk. But "Please tell Tia to call us if she needs any help."
So, I gather the comatose Mog up and fasten her into her wheelchair. I bump her along the road to school with Little Fish; the movement disturbs her peaceful slumber and she goes into a seizure instead - which I can't treat, as I've already given her diazepam for the spasm. Bump bump, motorbike and noisy bus, children shouting and bump bump bump, every noise and every bump another small seizure, off to school and back again and then finally she is free to rest and sleep off a miserable morning.
I'm still puzzled though. For a grown woman, with children and grandchildren, with a CRB form and references and, one assumes, a decent amount of experience in walking in a straight line, to walk a small child to school is considered too much of a risk. But to allow that same woman, despite not having the relevant training, to stay with an unstable child whilst I walk to school and back again (so doubling the time spent alone with the child) is not too great a risk. And for me to have to risk fairly impressively big seizures (as well as a return of the spasm) by dragging Mog with me to get Little Fish to school is not considered too much of a risk either. Or is it simply that it would be my risk, not theirs?
And, given the refusal to allow the carer to help, exactly what help did they have in mind when inviting me to call them and request it? Meanwhile, I'm researching lie-flat chairs which would at least make the journey bearable for Mog. Anyone got any suggestions? I think it's going to need to be a buggy rather than a wheelchair as the handles on the wheelchair tend to disappear when you recline it.