Friday, 14 December 2012

Growing Up

I have just dropped the Little Princess off at her Brownie Sleepover. She had a practice run back in the summer, staying until bedtime and then coming home. At 11PM, still full of joy and enthusiasm and thinking that she might want to stay next time.

So when this next sleepover came, tLP was quite excited. And then worried, and then excited again. And then we started making plans.

Our aim was to be free from overnight tubes by this point. We haven't quite managed that, but she is able to direct one of the Brownie Guiders well enough that hooking her up won't be a problem.

She didn't want the Brownies to see her on her Nippy (ventilator). And she was worried that it might be too noisy. So she spoke to the respiratory nurse herself, to ask if she could leave it off for one night. And received permission to do so.

She has gone without her gastrostomy extension tube, and so will be taking all her meds orally. Even the ones which don't taste nice. She has chosen to avoid the leg bag option, and will therefore have to take responsibility for noticing when she needs to cath. She has stripped down her morning and evening routines to the bare minimum, and is confident enough that I know she will either manage herself, or manage to direct others to help her with all the bits she really can't avoid doing.

And she has remembered her torch, her apron, her pencil case with sharpened pencils, two pints of milk, and her craft tubs.

Not bad for seven!


Alesha said...

AWESOME!!! I can't wait to hear how it goes!

Bittersweet progress, yeah? ;)

Anonymous said...

Wow how exciting !

Lisa B said...

Wow!! I hope she has a great time. Can't wait to hear all about it.

Angry Birds said...

Really Good Post ..Thanks for sharing...

Val said...

Brilliant!!! Very impressed - hope it all goes to plan and she haves a great time!


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