Mog's definitely back on form.
New clothes today, quite a bit of shopping actually. She turned down the chance to shop with our nearly 17 year old friend, opting instead to stick with me - giggling because she thought I had more money. She laughed as tLP puked her lunch (lots of choking these past 2 days, not quite sure why), she grinned as she kicked everyone under the table tonight, and howled with laughter when she managed to insult our friends. It's amazing how rude a non-verbal child can be when she tries!
No painkillers, no anti spasms, no extra meds at all, just lots of happiness and generally seizing the chance to have a really Good Day.
Epcot tomorrow
Tia
Wednesday, 31 October 2012
Tuesday, 30 October 2012
We Ride the I-ride
I can't say how nice it is to be able to turn up without any kind of appointment or prearrangement, to know that within the next twenty minutes a bus will turn up, and that it will have space for two girls and their wheelchairs.
To know that the driver will have no hesitation in getting people to shift down the bus out of the wheelchair spots, and that there will be not just space, but four point tie downs, on each and every bus, is impressive.
Add in the fact children travel for free, adults travel for not a lot, and no one else on the bus huffs and puffs about the time it takes to clamp the girls in, and you have a transportation system which really works. Provided you ignore the fact that some of the drivers don't know how to operate the lift, that is. Thankfully, their radio link person seems to have clear instructions, and on the one occasion the lift wouldn't cooperate at all, the supervisor turned up in an empty bus within minutes, and beat it back into submission.
We like. It makes it possible not to drive, it means we don't need taxis everywhere we go; we can in fact be tourists just like everyone else.
Of course, when the ahem charming child behind me decides to use my admittedly well padded rear end as a foot rest, I think the taxi option might not be such a bad option after all...
Tia
To know that the driver will have no hesitation in getting people to shift down the bus out of the wheelchair spots, and that there will be not just space, but four point tie downs, on each and every bus, is impressive.
Add in the fact children travel for free, adults travel for not a lot, and no one else on the bus huffs and puffs about the time it takes to clamp the girls in, and you have a transportation system which really works. Provided you ignore the fact that some of the drivers don't know how to operate the lift, that is. Thankfully, their radio link person seems to have clear instructions, and on the one occasion the lift wouldn't cooperate at all, the supervisor turned up in an empty bus within minutes, and beat it back into submission.
We like. It makes it possible not to drive, it means we don't need taxis everywhere we go; we can in fact be tourists just like everyone else.
Of course, when the ahem charming child behind me decides to use my admittedly well padded rear end as a foot rest, I think the taxi option might not be such a bad option after all...
Tia
Sea World.
One of our most favouritest places in the whole wide world.
One super happy Mog, singing away for all the shows.
One slightly terrified Little Princess, very disconcerted by a 3-D movie shot from the perspective of a baby sea turtle.
One awfully big adventure, when the lift on the I-Ride trolley broke and it looked like both girls would have to stay on board forever. Until the supervisor came and did the magic turn it off and on again manoeuvre;at which point tLP led the bus in around of cheers and applause.
A properly Good Day.
Tia
One super happy Mog, singing away for all the shows.
One slightly terrified Little Princess, very disconcerted by a 3-D movie shot from the perspective of a baby sea turtle.
One awfully big adventure, when the lift on the I-Ride trolley broke and it looked like both girls would have to stay on board forever. Until the supervisor came and did the magic turn it off and on again manoeuvre;at which point tLP led the bus in around of cheers and applause.
A properly Good Day.
Tia
Labels:
Little Fish,
Mog
Sunday, 28 October 2012
Disney
Much fun in the Magic Kingdom. Mostly. Mog sadly was very uncomfortable most of the day, but stopped crying long enough to enjoy Thunder Mountain, Pirates on the Caribbean, and a twirl on the Teacups.
The Little Princess enjoyed the lot, and I'm hoping to steal our friends' photos of her and the other smalls waiting for the parade.
Lots of fun, minimal whinging (Mog aside), and a gentle baking sun. Lovely. Tomorrow we are off to Seaworld, where I hope the manatees and dolphins might help put her into a better mood.
Tia
The Little Princess enjoyed the lot, and I'm hoping to steal our friends' photos of her and the other smalls waiting for the parade.
Lots of fun, minimal whinging (Mog aside), and a gentle baking sun. Lovely. Tomorrow we are off to Seaworld, where I hope the manatees and dolphins might help put her into a better mood.
Tia
Labels:
Little Fish,
Mog
Longer Letter - Lessons Learned
This will be our third family trip to Florida; tLP's second, much to her confusion and disgust. She finds the concept that we existed before she did to be bizarre beyond belief.
We learned last time that whilst staying in Lake Buena Vista may well be cheaper than staying on International Drive, you can't really do it without a car.
We learned the first time that a week is never long enough.
And this time, we have learned positive lessons.
It is worth spending the night near the airport for an early flight, rather than getting up at silly o'clock in the morning, fretting throughout the drive there about the time it's taking and what might have been forgotten, and finally arriving more fit for bed than a mammothly long journey.
It is definitely worth doing a spot of research in advance, rather than rusting to the breezy assurances of the hotel receptionist, if you need a taxi large enough for two wheelchair users and a lot of luggage.
Flying from Gatwick as a group requiring special assistance is a dream. From the chap who hailed us as we got out of our taxi, to the pager we were given so we didn't have to sit in a corner waiting for our escorts, to the security staff who kept the girls and myself together even during pat downs, and who only made me taste the nicer of Mog's blends, the whole experience was much calmer and gentler than at bigger airports.
Sadly, suitcases containing miscellaneous articles including, but not limited to, wheelchair chargers, boxes of catheters, and small packets of saline are always going to attract attention, and they probably should.
Virgin Atlantic staff - medical engineering staff stuck on a neverending loop about the ventilator battery aside - have been absolutely outstanding. I think they've probably spent nearly as many man hours preparing for this holidays as we shall be spending on it!
Special appreciation goes to the cabin crew who repeatedly reinflated Mog's Burnett Support. We thought it was deflating itself, but I think the toddler sitting behind us may have contributed a little!
Mog managed the flight superbly. I'm sure the fact that we spent the night at the airport helped considerably. But I had come armed with pain killers, sedatives, muscle relaxants and assorted emergency meds, and she needed none of them. Perched on the very edge of her seat, wedged in by a wobbly Burnett and a stack of pillows, she kicked and grinned and enjoyed herself mightily.
Lesson learned - the financial pain of a direct flight is very very definitely worth paying.
The chap who greeted us at Orlando posted us to the front of the customs queue then disappeared to find our luggage. No queues no delays, and our friends who had been upstairs on the plane caught up with us in time to catch a monorail over to our shuttle and on to the hotel.
And the hotel had sorted rooms so we and our friends are close enough for the children to visit, but far enough apart that they can't hear the girl's early morning strops. It's all good, as is the make-your-own waffle breakfast.
Our more energetic friends disappeared off to take Jedi Knight training lessons this morning whilst we pottered around, picking up supplies and generally getting a feel for our location (ok, ok, by going for a long walk in the wrong direction before finding the short cut back to the hotel).
And in the afternoon, time spent finally meeting a family who have been net friends for a decade or more; the lovely Alesha and co. I'm writing this on my phone so can't link, but you'll find Alesha at Obtaining Mercy on the links over here--------->. Unless you're reading this on a phone, in which case you won't. But she's lovely, and her blog is worth reading, and she makes beautiful jewellery.
Lesson reinforced; the Internet is in itself neither good nor bad, but we can use it as we choose. And I choose to use it to connect to friends, and it turns out those friends are friends no matter what distance there may be physically.
I could put that more succinctly but it's late, I've been awake since 2.30, and I'm now typing as much to keep myself awake as to share anything useful with anyone.
The girls were on top form for the visit; tLP happy and chatty and keen to tell her jokes. One day she'll find a real punch line, but in the meantime laughter over the random surreality convinces her she's a master entertainer. And Mog decided to get very chatty, named her new toy money after Alesha, gazed long and hard at the handsome Isaac (but don't worry, L, you remain her favourite!), and told us all how much she wants to go to see Mickey and go shopping for a new dress.
Both girls fast asleep beside me here in our room now, as I blind type this; the light from the screen being too much of a contrast to the dark room for my eyes to proofread. Which is a rubbish excuse, but still, my apologies.
And now I must join them; I woke up at 2.30 Florida time and it's now 2.30 UK time and although I know I haven't, my body is adamant I've stayed up 24 hours.
A lovely restful day, and tomorrow we need to find a Small World, some Pirates, Winnie the Pooh, some spinning teacups, and a set of princesses. It's all good.
Tia
We learned last time that whilst staying in Lake Buena Vista may well be cheaper than staying on International Drive, you can't really do it without a car.
We learned the first time that a week is never long enough.
And this time, we have learned positive lessons.
It is worth spending the night near the airport for an early flight, rather than getting up at silly o'clock in the morning, fretting throughout the drive there about the time it's taking and what might have been forgotten, and finally arriving more fit for bed than a mammothly long journey.
It is definitely worth doing a spot of research in advance, rather than rusting to the breezy assurances of the hotel receptionist, if you need a taxi large enough for two wheelchair users and a lot of luggage.
Flying from Gatwick as a group requiring special assistance is a dream. From the chap who hailed us as we got out of our taxi, to the pager we were given so we didn't have to sit in a corner waiting for our escorts, to the security staff who kept the girls and myself together even during pat downs, and who only made me taste the nicer of Mog's blends, the whole experience was much calmer and gentler than at bigger airports.
Sadly, suitcases containing miscellaneous articles including, but not limited to, wheelchair chargers, boxes of catheters, and small packets of saline are always going to attract attention, and they probably should.
Virgin Atlantic staff - medical engineering staff stuck on a neverending loop about the ventilator battery aside - have been absolutely outstanding. I think they've probably spent nearly as many man hours preparing for this holidays as we shall be spending on it!
Special appreciation goes to the cabin crew who repeatedly reinflated Mog's Burnett Support. We thought it was deflating itself, but I think the toddler sitting behind us may have contributed a little!
Mog managed the flight superbly. I'm sure the fact that we spent the night at the airport helped considerably. But I had come armed with pain killers, sedatives, muscle relaxants and assorted emergency meds, and she needed none of them. Perched on the very edge of her seat, wedged in by a wobbly Burnett and a stack of pillows, she kicked and grinned and enjoyed herself mightily.
Lesson learned - the financial pain of a direct flight is very very definitely worth paying.
The chap who greeted us at Orlando posted us to the front of the customs queue then disappeared to find our luggage. No queues no delays, and our friends who had been upstairs on the plane caught up with us in time to catch a monorail over to our shuttle and on to the hotel.
And the hotel had sorted rooms so we and our friends are close enough for the children to visit, but far enough apart that they can't hear the girl's early morning strops. It's all good, as is the make-your-own waffle breakfast.
Our more energetic friends disappeared off to take Jedi Knight training lessons this morning whilst we pottered around, picking up supplies and generally getting a feel for our location (ok, ok, by going for a long walk in the wrong direction before finding the short cut back to the hotel).
And in the afternoon, time spent finally meeting a family who have been net friends for a decade or more; the lovely Alesha and co. I'm writing this on my phone so can't link, but you'll find Alesha at Obtaining Mercy on the links over here--------->. Unless you're reading this on a phone, in which case you won't. But she's lovely, and her blog is worth reading, and she makes beautiful jewellery.
Lesson reinforced; the Internet is in itself neither good nor bad, but we can use it as we choose. And I choose to use it to connect to friends, and it turns out those friends are friends no matter what distance there may be physically.
I could put that more succinctly but it's late, I've been awake since 2.30, and I'm now typing as much to keep myself awake as to share anything useful with anyone.
The girls were on top form for the visit; tLP happy and chatty and keen to tell her jokes. One day she'll find a real punch line, but in the meantime laughter over the random surreality convinces her she's a master entertainer. And Mog decided to get very chatty, named her new toy money after Alesha, gazed long and hard at the handsome Isaac (but don't worry, L, you remain her favourite!), and told us all how much she wants to go to see Mickey and go shopping for a new dress.
Both girls fast asleep beside me here in our room now, as I blind type this; the light from the screen being too much of a contrast to the dark room for my eyes to proofread. Which is a rubbish excuse, but still, my apologies.
And now I must join them; I woke up at 2.30 Florida time and it's now 2.30 UK time and although I know I haven't, my body is adamant I've stayed up 24 hours.
A lovely restful day, and tomorrow we need to find a Small World, some Pirates, Winnie the Pooh, some spinning teacups, and a set of princesses. It's all good.
Tia
Saturday, 27 October 2012
Longer Letter Later
Or earlier. Or at some point.
We got to the hotel. It was a leetle cramped, but fine. Our taxi arrived in plenty of time, we had fantastic assistance at Gatwick, the flight was a little delayed but fine, and the wheelchairs survived the flight.
We had great help again at Orlando, found our friends who seemed to be as pleased to see us as we were to see them, have a nice hotel and have just had a meal at Denny's.
And now it's either 9.30 or 2.30, depending whose clock we're following. But either way, the walls are swaying and it's bedtime. Least stressful flight ever and both girls have coped outstandingly! And I'll probably find something more interesting to say tomorrow, but for now, goodnight.
Tia
We got to the hotel. It was a leetle cramped, but fine. Our taxi arrived in plenty of time, we had fantastic assistance at Gatwick, the flight was a little delayed but fine, and the wheelchairs survived the flight.
We had great help again at Orlando, found our friends who seemed to be as pleased to see us as we were to see them, have a nice hotel and have just had a meal at Denny's.
And now it's either 9.30 or 2.30, depending whose clock we're following. But either way, the walls are swaying and it's bedtime. Least stressful flight ever and both girls have coped outstandingly! And I'll probably find something more interesting to say tomorrow, but for now, goodnight.
Tia
Labels:
Little Fish,
Mog
Thursday, 25 October 2012
Getting Ready
On today's to-do list
Make luggage labels and write them.
check everything cancelled which needs to be cancelled.
Leave notes for them wot needs notes.
Not on today's to-do list
Tia
Shower girls, prune and trim and generally make tidy before school.Breakfasts and meds and everything else we normally need to do.Finish packing.Cats to cattery.Washing.Washing up.Update girls' medical information books and pack them too.Load bus.Empty bins.Talk to neighbours.Deal with overflow of fruit and veg.double check passports, tickets, etc.
- Nip into school and shave my daughter.
Tia
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