Sitting in the waiting room, we met the gastroenterology liaison nurse, who heard my concerns about LF's gastrostomy site and suggested a different course of treatment, one we've not tried before - she thinks the problem could be fungal. Has to be worth trying.
We then found the respiratory liaison nurse, who was able to give us a new bonnet for LF's Nippy ventilator. Very useful, as she vomited all over the old one last night, and it fell apart when I tried to wash it. Ooops.
As she dropped a shiny new bonnet into my hands, the neurosurgeon called our names, and, armed with LF's 18 inch high stack of notes, he
We then left and caught the lift downstairs to our bus. Walking past the WRVS shop, we bumped into the girls' paediatrician, who did a quick informal review of all their care. That's another phonecall saved.
And once in the bus, the phone rang, neurology registrar phoning to check up on Mog after her recent drugs tweak. We now have an appointment with Mog's neuro set up for next month.
There are advantages to becoming well known by the hospital staff!