Strength for today and bright hope for tomorrow?
And this?Not for much longer, you won't.
We saw Little Fish's spinal consultant today. She now has scoliosis with a 25 degree curve. He expects this will deteriorate, probably relatively quickly, and that she will need major surger for it at some point in the next ten years. Bracing is not an option, so the only thing we can do to help slow the curvature down is to ensure she is always sitting in chairs with good lateral supports. No sitting on the floor, no sitting on a stool, no sitting in her manual wheelchair unless laterals can be fitted. No classroom chairs, no settees, well you get the picture.
Anyone want to try to explain to Little Fish why she can't do something she actually can do? It's hard enough explaining why she can't use the trampoline/bouncy castle/climbing frame...
The day did not start well - Mog was fitting and having breathing problems from 2AM until sunrise. The post wasn't great either - Little Fish has minor surgery booked for the end of the month, during our half term holiday. She needs it, it's good that it's happening, but the timing could be better. The messages on the answerphone were all to do with problems covering our care shifts (Staff off sick and on holiday). A friend has had major brain surgery today. And now this.
So, if you've got any really bad news, could you throw it at me now please, I'd rather get it out of the way.